A Family in B.C. Finds Hope for Their Son’s Rare Disease

Gurmoh Gill is three years old. He has a disease with no cure.

He has a rare condition that makes his legs weak. It can also affect his arms, speech, and mind.

His parents were very upset when they heard the news.

They felt hopeless because there is no medicine for their child. He will lose the things he can do.

The family asked for help from hospitals and the government.

In January, they got an answer from Montreal’s Neuro hospital.

They felt hopeful and strong. This hope helps them fight for their child.

Researchers are studying Gurmoh’s genes to find a way to help him.

They want to slow down the disease, not fix what is already done.

If they can fix the problem in his genes, that would be the best thing. It would give them a lot of hope.

The family felt happy when researchers said they would help their son.

Now they want to do more to help others.

They are traveling across Canada to raise money and awareness. They want to help families like theirs.

They think everyone should have access to medicine. It should not be unfair.

Medicine should be for every Canadian.

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